Welcome to the CMTAA website

As those of us who have Charcot-Marie-Tooth (CMT) disease are well aware, we have it for life, and at this point in time there is no known cure. The CMT Association of Australia Inc (CMTAA) was established to support those with CMT, their families and friends; and to expand community awareness and understanding of CMT. We are staffed entirely by volunteers.

Significant progress is being made through worldwide collaboration, including establishing CMT support organisations like CMTAA Inc; developing management strategies for those with CMT; and through CMT research.

This website is positioned as a conduit for accessing local and international CMT related information that will assist in answering many of your questions. We invite you to explore the site and welcome your feedback for further improvement.

Darryl Beitsch
President CMTAA Inc
"Our aim is to enhance the quality of life for people with CMT and those who care for them."

What's new at CMTAA?

Good News
The CMT specific survey titled "A SURVEY OF COST-UTILITY, WELLBEING AND MANAGEMENT" is now ready to go. Our CMTAA membership have now received a hard copy of the survey or an electronic link to complete the survey on-line. It is a worthwhile investment of 25 - 30 minutes to complete the survey.

More Good News

The survey is not restricted to members of the CMTAA. 

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Expressions of Interest for our exciting Friday August 28 to Sunday August 30, 2015, CMT Aussie Kids Weekend.

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The Open House programme on Hope Media 103.2 interviewed the husband of a new mum who has CMT and also the President of our CMTAA.  Hear how this young family were dealing with CMT related mobility challenges plus CMTAA developments to support those with CMT.

Open House has a listener reach in NSW, VIC, SA and QLD.

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A significant benefit for children participating in this trial is that they will be at the forefront of clinical research. They will be involved in a unique experimental treatment that will provide solid training in self-discipline preparing them for future adult life as a person with CMT. This trial is now being extended to include regional NSW areas.

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Inspired by the fact that his son has CMT, Kevin has now successfully completed his trek to Mt. Everest base camp. 

The good news - Kev's book "Walk With Me" will be launched on Saturday November 22.

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Upcoming Seminars
Sydney Awareness Seminar Weekend Saturday 12 and Sunday 13 September 2015
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CMT Aussie Kids Weekend August 28 to 30 2015
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If you wish to make a donation to CMTAA Inc, please click here. All donations of $2 or more are tax deductible. We need your help to keep us moving forward.
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Click here if you would like to become a member of the Charcot-Marie-Tooth Association of Australia Inc. (CMTAA).
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Click here if your organisation is interested in becoming a Sustaining Partner of the Charcot-Marie-Tooth Association of Australia Inc. (CMTAA).
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