CMT Australia State, Regional and NZ Coordinator and Support Group Contacts

How often have you wanted to speak with someone who also has CMT?

This is where our State and Regional area Coordinators and Support Group Contacts play an important role providing you with the opportunity to share with and learn from other people who have CMT living in your area.

Our coordinators are available to assist people with CMT and their families with contact names for medical and allied medical professionals who have experience with CMT patients. They are also available to assist with other valuable support. Some coordinators are also Support Group contacts who organise meetings or ‘coffee mornings’ where ideas are being shared and members are able to support each other by discussing the challenges that they face. They have found that just having someone to talk to who is also on the “CMT journey” has helped them and their families cope with CMT in many ways.

Support Groups are also open to those caring for people with CMT and for parents of children with CMT. It’s all about mutual encouragement as we negotiate the many challenges that living with CMT brings to us. The CMTAA Inc encourages members of our CMT “Family” to participate in these Support Groups.

If you are interested in becoming a Regional Coordinator, or a contact person for a Support Group in your area please contact our National office on:
Phone: 02 9767 5105 or by email: cmtaa2@cmt.org.au

The following Support Groups can be contacted to find out when and where their meetings are being held. 

 

NEW SOUTH WALES

State Coordinator
Contact: National Office
Phone: 02 9767 5105 
Email: cmtaa2@cmt.org.au

Support Groups
Sydney Western Suburbs Area
Contact person: Mrs Carmen Frendo
Email: cmtwestsydney@gmail.com
Mobile: 0404 848 076

Sydney North
Contact person: Mr. Darryl Beitsch
Email: drbeitsch@bigpond.com
Mobile: 0411 556 063

Bathurst and District Area
Contact person: Mrs. Sandra Stephens
Email: barisan_two@iinet.net.au
Mobile: 0421 497 236 

Nambucca Heads Area
Contact person: Mrs Meryl Grew
Email: merrynow@bigpond.com
Mobile: 0428 764 686

Wollongong and Illawarra Area
Contact person: Ms. Tracey Lee
Phone: 02 4272 5505

Mudgee Area
Contact person: Mrs. Ann Milligan
Mobile: 0450 737 563

Newcastle Area
Contact person: Mrs. Gabbi Cosgrove
Email: gabbypizzingrilli@hotmail.com
Mobile: 0412 891 647

Southern Highlands Area
Position vacant

Wagga Wagga Area
Contact person: Mrs. Jean Purvis
Phone: 02 6931 4635
Mobile: 0402 535 692
Email: jpurvisdg@gmail.com

Central Northern Area
Contact person: Vacant
Email: 
Mobile: 

Central West
Contact person: Vacant
Email: 
Phone:

AUSTRALIAN CAPITAL TERRITORY

State Coordinator
Canberra and ACT Area
Contact person: Mr Roger MacRury
Email: roger.macrury@gmail.com
Phone: 0429 491 148 

VICTORIA

State Coordinators and Support Group Contacts
Melbourne
Contact person: Kathy Robins
Email: kathyr@blanketsecurity.com.au
Mobile: 0407 114 380

Contact person: Paula Hodgson
Email: paula_denise@bigpond.com
Mobile: 0419 351 765

Bendigo Area
Contact person: Mrs. Heather Anderson
Phone: 03 5439 3774

TASMANIA

State Coordinator and Support Group Contact
Hobart Area
Contact person: Mrs. Marilyn Kremmer
Email: mmkremmer1@bigpond.com
Phone: 03 6239 1142
Mobile: 0409 391 142

SOUTH AUSTRALIA

State and Support Group Coordinator
Mrs. Lisa Moore
Email: cmtaa-sa@cmt.org.au

SA Facebook: F/South Australia Regional CMT support group

SA Western Region 
Vacant

SA Northern Region
Mrs. Lisa Moore
Mobile: 0459 084 437

SA Southern Region
Vacant

SA Eastern Region
Vacant

WESTERN AUSTRALIA

State Coordinator and Support Group Contact Perth Area
Contact person: Mr. Vic Christou
Email: vchristou@iprimus.com.au
Mobile: 0400 611 933

QUEENSLAND

State Coordinator
Contact: Mrs. Margaret Burke
Email: rfbmb@aol.com
Phone: 07 3886 2492

Regional Coordinators and Support Group Contacts
Sunshine Coast Area
Contact person: Mrs. Aileen Harrison
Email: aileenadvice@gmail.com
Phone: 07 5309 6362
Mobile: 0400 372 640

Brisbane Area
Contact person: Mr. Stephen Bonner
Email: stephencmt@iinet.net.au
Phone: 07 3204 7903
Mobile: 0404 688 824

Northern Brisbane Area
Contact person: Mrs. Margaret Burke
Email: rfbmb@aol.com
Phone: 07 3886 2492

South Brisbane Area
Contact person: Mrs. Una Window
Email: una.window@optusnet.com.au
Mobile: 0421 575 917 

Gold Coast Area
Contact person: Mrs. Judy Pinchin
Email: judithpinchin@bigpond.com
Phone: 07 5563 8421

South-West Area
Contact person: Mrs. Joy Gath
Email: joygath67@gmail.com
Phone: 07 4668 9009

Bundaberg Area
Contact person: Mrs. Anne Purcell
Email: anne.rod@hotmail.com
Mobile: 0407 584 099

Townsville and District
Contact person: Rose Cleary
Email: rose.cleary@my.jcu.edu.au
Mobile: 0459 957 393

NT

State Coordinator
Darwin Area
Contact person: Mrs. Kaye Bartlett
Email: kayecmt@iinet.net.au
Phone: 08 8985 4201

NEW ZEALAND

Wellington Region

Contact person: Francesca Herdahl-Thorsing
Email: francesca.thorsing@gmail.com 
Phone: +64 (0)28 435 9478 (Between 5pm-9pm)