How often have you wanted to speak with someone who also has CMT?
This is where our State and Regional area Coordinators and Support Group Contacts play an important role providing you with the opportunity to share with and learn from other people who have CMT living in your area.
Our coordinators are available to assist people with CMT and their families with contact names for medical and allied medical professionals who have experience with CMT patients. They are also available to assist with other valuable support. Some coordinators are also Support Group contacts who organise meetings or ‘coffee mornings’ where ideas are being shared and members are able to support each other by discussing the challenges that they face. They have found that just having someone to talk to who is also on the “CMT journey” has helped them and their families cope with CMT in many ways.
Support Groups are also open to those caring for people with CMT and for parents of children with CMT. It’s all about mutual encouragement as we negotiate the many challenges that living with CMT brings to us. The CMTAA Inc encourages members of our CMT “Family” to participate in these Support Groups.
If you are interested in becoming a Regional Coordinator, or a contact person for a Support Group in your area please contact our National office on:
Phone: 02 9767 5105 or by email: cmtaa2@cmt.org.au
The following Support Groups can be contacted to find out when and where their meetings are being held.
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NEW SOUTH WALES
State Coordinator
Contact: National Office
Phone: 02 9767 5105
Email: cmtaa2@cmt.org.au
Support Groups
Sydney Western Suburbs Area
Contact person: Mrs Carmen Frendo
Email: cmtwestsydney@gmail.com
Mobile: 0404 848 076
Sydney North
Contact person: Mr. Darryl Beitsch
Email: drbeitsch@bigpond.com
Mobile: 0411 556 063
Bathurst and District Area
Contact person: Mrs. Sandra Stephens
Email: barisan_two@iinet.net.au
Mobile: 0421 497 236
Nambucca Heads Area
Contact person: Mrs Meryl Grew
Email: merrynow@bigpond.com
Mobile: 0428 764 686
Wollongong and Illawarra Area
Contact person: Ms. Tracey Lee
Phone: 02 4272 5505
Mudgee Area
Contact person: Mrs. Ann Milligan
Mobile: 0450 737 563
Newcastle Area
Contact person: Mrs. Gabbi Cosgrove
Email: gabbypizzingrilli@hotmail.com
Mobile: 0412 891 647
Southern Highlands Area
Position vacant
Wagga Wagga Area
Contact person: Mrs. Jean Purvis
Phone: 02 6931 4635
Mobile: 0402 535 692
Email: jpurvisdg@gmail.com
Central Northern Area
Contact person: Vacant
Email:
Mobile:
Central West
Contact person: Vacant
Email:
Phone:
AUSTRALIAN CAPITAL TERRITORY
State Coordinator
Canberra and ACT Area
Contact person: Mr Roger MacRury
Email: roger.macrury@gmail.com
Phone: 0429 491 148
VICTORIA
State Coordinators and Support Group Contacts
Melbourne
Contact person: Kathy Robins
Email: kathyr@blanketsecurity.com.au
Mobile: 0407 114 380
Contact person: Paula Hodgson
Email: paula_denise@bigpond.com
Mobile: 0419 351 765
Bendigo Area
Contact person: Mrs. Heather Anderson
Phone: 03 5439 3774
TASMANIA
State Coordinator and Support Group Contact
Hobart Area
Contact person: Mrs. Marilyn Kremmer
Email: mmkremmer1@bigpond.com
Phone: 03 6239 1142
Mobile: 0409 391 142
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SOUTH AUSTRALIA
State and Support Group Coordinator
Mrs. Lisa Moore
Email: cmtaa-sa@cmt.org.au
SA Facebook: F/South Australia Regional CMT support group
SA Western Region
Vacant
SA Northern Region
Mrs. Lisa Moore
Mobile: 0459 084 437
SA Southern Region
Vacant
SA Eastern Region
Vacant
WESTERN AUSTRALIA
State Coordinator and Support Group Contact Perth Area
Contact person: Mr. Vic Christou
Email: vchristou@iprimus.com.au
Mobile: 0400 611 933
QUEENSLAND
State Coordinator
Contact: Mrs. Margaret Burke
Email: rfbmb@aol.com
Phone: 07 3886 2492
Regional Coordinators and Support Group Contacts
Sunshine Coast Area
Contact person: Mrs. Aileen Harrison
Email: aileenadvice@gmail.com
Phone: 07 5309 6362
Mobile: 0400 372 640
Brisbane Area
Contact person: Mr. Stephen Bonner
Email: stephencmt@iinet.net.au
Phone: 07 3204 7903
Mobile: 0404 688 824
Northern Brisbane Area
Contact person: Mrs. Margaret Burke
Email: rfbmb@aol.com
Phone: 07 3886 2492
South Brisbane Area
Contact person: Mrs. Una Window
Email: una.window@optusnet.com.au
Mobile: 0421 575 917
Gold Coast Area
Contact person: Mrs. Judy Pinchin
Email: judithpinchin@bigpond.com
Phone: 07 5563 8421
South-West Area
Contact person: Mrs. Joy Gath
Email: joygath67@gmail.com
Phone: 07 4668 9009
Bundaberg Area
Contact person: Mrs. Anne Purcell
Email: anne.rod@hotmail.com
Mobile: 0407 584 099
Townsville and District
Contact person: Rose Cleary
Email: rose.cleary@my.jcu.edu.au
Mobile: 0459 957 393
NT
State Coordinator
Darwin Area
Contact person: Mrs. Kaye Bartlett
Email: kayecmt@iinet.net.au
Phone: 08 8985 4201
NEW ZEALAND
Wellington Region
Contact person: Francesca Herdahl-Thorsing
Email: francesca.thorsing@gmail.com
Phone: +64 (0)28 435 9478 (Between 5pm-9pm)
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