In 2015 a research project was produced by The University of Sydney for the Charcot Marie Tooth Association of Australia Inc. under the Chronic Disease Prevention and Service Improvement Fund, an Australian government initiate administered by the Department of Health and Ageing.
The project was titled “Reducing the Health Burden of Charcot Marie Tooth in Australia”.
This is the first time a comprehensive project of this nature has been undertaken in Australia.
Many of our CMTAA members and others in our CMT Family and those caring for them contributed valuable information through a nation wide survey and nation wide focus groups. A heart felt "THANK YOU" to all who contributed. Your information was collated by Dr. Scott Denton and his team to produce the comprehensive 105 page report that has been submitted to the Australian Government. We have received approval to make this report available to our "CMT Family", their carers, researchers and others who may be interested.
To view this report, please click onto the link below: