The CMTAA is pleased to provide the following high level outcomes from its recent survey of member satisfaction. Our survey attracted over 130 responses which we feel was an extremely strong sign of the engagement of our members in this process. To all our members we say thank you.
We are pleased to find that the overwhelming majority of members appear happy with their membership and the activities of their association.
The first area our survey focused on was why our members joined and what keeps them renewing each year. The key responses were:
- To access information on CMT
- To keep up to date with CMT Research
- To help them with the management of their CMT
- To network with other CMT sufferers
We then asked about our Coffee and Chat Sessions. There seems to be good support for these but a clear message was that CMTAA improve its communication of upcoming Chat sessions. The CMTAA will be working on improving our communication in this area. A second theme was a need for more variety in location of these chats in more regional areas. With a widely-spread membership across Australia this is a little more challenging but we would be very happy to help facilitate more regional catch-ups. Anyone who is able to arrange such a catch up in their local area is welcome to call Anycie in our National Office who can help put you in contact with other local members. We are always looking for people willing to perform the role of regional coordinators, which is not a big job, and would be very happy to get more volunteers in this regard.
Our next series of questions were about our Website, Newsletter and Facebook pages. At this stage it is clear that our web site is used by members more often than our Facebook page although Facebook is increasing in popularity. Those members using our Facebook page appear to be using it primarily for social interaction with other CMT users. Members generally called for more feature articles from Allied Health Practitioners and on services for people with CMT for both our web page and our newsletter. There was also demand for more news on what is happening in the CMT community outside Australia. Your committee will be actively looking to fulfil this requirement of our membership.
Our Regional Support groups have moderate support from our members. There was a call for more meetings and more volunteers to arrange these meetings.
In terms of the strategic direction of the CMTAA our members strongly supported us ensuring that we focus on the following areas:
- Helping our members navigate the NDIS
- Supporting a multi-disciplinary clinic and other support for adults with CMT
- Improving the awareness of CMT within the medical community particularly with respect to GP’s.
Ideas regarding Fundraising were broad but included more active lobbying of governments for funding and promoting more workplace giving.
The overwhelming majority of respondents indicated a willingness to being invited to participate in CMT research.
The primary group other than the CMTAA that members look to for information about CMT was the Muscular Dystrophy Australia. The CMTAA will investigate building stronger links with this organisation.
Again the CMTAA thanks its membership for the high level of support for this survey and is pleased that much of the feedback from members aligns with our existing Strategic Plan that we continue to work to implement.
Further I would like to thank Robert Twin and Chris Brown for their extensive effort in the preparation of this survey and collation and reporting on the results. Thanks very much guys