Archives
Please use the drop-down menu below to navigate through our archive of news articles.
Auditory Neuropathy Research Study Recruitment

Difficulty hearing friends and family can lead to social isolation, and negatively impact on education and communication at work.
This is your opportunity to assist our researchers to assist those with CMT who have hearing difficulties.
 

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Reducing the Health Burden of Charcot Marie Tooth in Australia

We are pleased to announce that the report "Reducing The Health Burden Of Charcot Marie Tooth in Australia 2015" is now available.

    

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CMTAA Strategic Plan

We invite you to share with us the exciting future vision of our CMTAA (Charcot-Marie-Tooth-Association of Australia Inc.).

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North Brisbane Support Group Contact


We welcome Mrs. Margaret Burke as our CMTAA Support Group contact for the North Brisbane Area.

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CMT Aussie Kids Going To UK
In 2016 CMT kids from the UK attended the first international CMT camp with the CMT Aussie Kids in Sydney and many of you supported activities run for these kids.
Now we are planning a return visit to the UK in July 2018, touring and participating in the UK camp in Keswick, Cumbria. 
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Fundraising for the CMTAA

Can you assist CMT research by helping with Fund Raising?

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CMT Aussie Kids 2016 You Tube Link

The You Tube link of the very exciting 2016 CMT Aussie Kids camp is now available.

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CMTAA DVDs

You can support the CMTAA by purchasing informative DVDs. These include exercises and seminar presentations. Simply click on "Support Us" and then click onto "DVD Sales".

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Moving Forward with CMT

The "Moving Forward With CMT" booklet is a "must read" for those on their CMT journey and those who have recently been diagnosed with CMT.

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CMT Awareness

Thank you CMT UK for this outstanding CMT Awareness video.

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CMTAA Represented in Venice

CMTAA on the international stage at a very successful CMT Consortium meeting in Venice, Italy.

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2016 Brisbane National Awareness Day Overview

An enlightening overview video of the very informative and successfull 2016 Brisbane National Awareness Day.

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CMT Gene Explorer App.


The CMT Gene Explorer is an educational app for iPad targeting early career neurologists, medical trainees and clinicians looking to further understand the genetic basis of CMT.

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Curtin University Transportation of Children with Disabilities Survey

Previous research in other countries has found that parents struggle to transport their child with a disability for a variety of reasons.

If this relates to your situation, you are invited to participate in an Australian first survey.

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South Australia Awareness Day 2015 DVD


The DVD of the "Who What When Where and How of CMT" informative SA Awareness Day is now available for purchase. 

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The Paul Thomas Story

The incredible story of Paul Thomas, a very determined man living with CMT and his decsion to amputate his right foot.

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Prof. Ouvrier Honoured

Our very good CMTAA friend, Professor Robert Ouvrier, has been awarded the Companion of the Order of Australia (AC) in today's Australia Day Honours.

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News from South Australia

Exciting news from South Australia.

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CMT and Medication Safety Research

This is the first time in Australia that CMT and Medication Safety is being investigated.

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Clinical Practice Guidelines

The first in a series of CMT related Clinical Practice Guidelines for Medical and Allied Health Professionals.

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Dr. Che Fornusek Interview

An inspiring interview with Dr Che Fornusek regarding the importance of sport for people with disabilities.

 

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CMT Awareness Hits the Radio Waves

The Open House programme on Hope Media 103.2 interviewed the husband of a new mum who has CMT and also the former President of our CMTAA.  Hear how this young family is dealing with CMT related mobility challenges plus CMTAA developments to support those with CMT.

Open House has a listener reach in NSW, VIC, SA and QLD.

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2016 National CMTAA Brisbane Awareness Day Seminar

View the informative presentations from the 2016 National CMTAA Brisbane Awareness Day Seminar.

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2015 CMT Awareness Day Seminar

View the informative presentations from the 2015 Sydney Awareness Day Seminar.

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Seasons Greetings from the CMTAA President

The President’s 2015 Christmas Message
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2014 CMT Awareness Day Seminar

View the informative speaker presentations from the 2014 Sydney Awareness Day Seminar.

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CMT Specific Survey

Good News
The CMT specific survey titled "A SURVEY OF COST-UTILITY, WELLBEING AND MANAGEMENT" has now been completed. A BIG THANK YOU to all who gave of their time and CMT experience to contribute to the survey. 

 

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CMT Aussie Kids 2014

Share the fun at our 2014 CMT Aussie Kids weekend August 2014. 

 

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Emeritus Professor Robert Ouvrier

The CMTAA congratulates Emeritus Professor Robert Ouvrier on being acknowledged by The Royal Australasian College of Physicians (RACP).

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Children’s Research Extended to Regional NSW

A significant benefit for children participating in this trial is that they will be at the forefront of clinical research. They will be involved in a unique experimental treatment that will provide solid training in self-discipline preparing them for future adult life as a person with CMT. This trial is now being extended to include regional NSW areas.

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CMT Motivates Trek to Mt Everest Base Camp

Inspired by the fact that his son has CMT, Kevin has now successfully completed his trek to Mt. Everest base camp. 

The good news - Kev's book "Walk With Me" will be launched on Saturday November 22.

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Research Studies in Melbourne and Sydney

Melbourne and Sydney research studies. An excellent opportunity to assist our researchers to assist us through participating in research studies for children in both Melbourne and Sydney and a research study for adults in Sydney.

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Human Clinical Trials Announced for CMT1A in Geneva

Exciting developments in CMT1A research.

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CMT DVD’S FOR SALE!

See our range of CMT DVD's available for sale here!

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Genetic Testing

An excellent overview of Genetic testing that assists us in understanding more of the "pros and cons" involved.

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“The heirloom no one wants”

Sydney Morning Herald article about CMT: Charcot-Marie-Tooth disorder, the most common inherited neurological condition, is poorly understood.

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Treatment Criteria about Charcot-Marie-Tooth Disease and other Peripheral Neuropathies

Latest research from the INMR about Charcot-Marie-Tooth disease and other peripheral neuropathies. Exciting research details regarding 7 abstracts covering treatment criteria.

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Foot Problems in Children With CMT

We studied the timing and progression of foot and ankle changes in 81 children with genetically confirmed Charcot-Marie-Tooth disease type 1A (CMT1A) and determined their impact on motor function and walking ability.

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Assessment Criteria about Charcot-Marie-Tooth Disease and other Peripheral Neuropathies

Latest research from the INMR about Charcot-Marie-Tooth disease and other peripheral neuropathies. Exciting research details regarding 9 abstracts covering assessment criteria.

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ANZAC Research Institute – Family Studies and Identifying New Genes Causing CMT

An opportunity to assist our researchers by participating in a new research initiative involving CMT families and family members.

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