The courage of a 14yr old with CMT.
Interesting information from the Australian Tax Office regarding setting up Workplace
Donating for CMT research from Fun Runs and other group activities.
Australia's Assoc. Professor Marina Kennerson and Professor Joshua Burns have joined a network of clinicians and scientists in the Asian Oceanic region.
Looking out for our "CMT Family".
As a financial CMTAA member, you can now view the informative presentations from our 2018 Hobart National Awareness Day Seminar
An Informative Publication.
We thank the CMTA USA for allowing us to share this publication with you.
A new name for CMTAA; uniting all Australians who are impacted by CMT,
empowering them to live their lives to the fullest; and encouraging our community to support us.
The 2018 CMTAA AGM on Saturday 20th October will be followed by a Special General Meeting.
The CMTAA is encouraged by this initiative taken by the Australian Paralympic Committee (APC). They are searching for the next
generation of talented Para-athletes to compete at a future Paralympic Games. Additionally, they provide opportunities for Para-athletes already
engaged within a Para-sport pathway who may be considering a transition to an alternative sport.
View the informative presentations from the 2017 National CMTAA Sydney Awareness Day Seminar.
Please be aware that there is a 20 second pause from when you press the play button to when the video commences on each of the 6 video presentations.
Read the high level results from the recent survey of our members
We are pleased to announce that the report "Reducing The Health Burden Of Charcot Marie Tooth in Australia 2015" is now available.
We invite you to share with us the exciting future vision of our CMTAA (Charcot-Marie-Tooth-Association of Australia Inc.).
Can you assist CMT research by helping with Fund Raising?
The You Tube link of the very exciting 2016 CMT Aussie Kids camp is now available.
You can support the CMTAA by purchasing informative DVDs. These include exercises and seminar presentations. Simply click on "Support Us" and then click onto "DVD Sales".
The "Moving Forward With CMT" booklet is a "must read" for those on their CMT journey and those who have recently been diagnosed with CMT.
Thank you CMT UK for this outstanding CMT Awareness video.
CMTAA on the international stage at a very successful CMT Consortium meeting in Venice, Italy.
An enlightening overview video of the very informative and successfull 2016 Brisbane National Awareness Day.
View the informative presentations from the 2016 National CMTAA Brisbane Awareness Day Seminar.
The CMT Gene Explorer is an educational app for iPad targeting early career neurologists, medical trainees and clinicians looking to further understand the genetic basis of CMT.
Previous research in other countries has found that parents struggle to transport their child with a disability for a variety of reasons.
If this relates to your situation, you are invited to participate in an Australian first survey.
The DVD of the "Who What When Where and How of CMT" informative SA Awareness Day is now available for purchase.
The incredible story of Paul Thomas, a very determined man living with CMT and his decsion to amputate his right foot.
Our very good CMTAA friend, Professor Robert Ouvrier, has been awarded the Companion of the Order of Australia (AC) in today's Australia Day Honours.
This is the first time in Australia that CMT and Medication Safety is being investigated.
The first in a series of CMT related Clinical Practice Guidelines for Medical and Allied Health Professionals.
An inspiring interview with Dr Che Fornusek regarding the importance of sport for people with disabilities.
The Open House programme on Hope Media 103.2 interviewed the husband of a new mum who has CMT and also the former President of our CMTAA. Hear how this young family is dealing with CMT related mobility challenges plus CMTAA developments to support those with CMT.
Open House has a listener reach in NSW, VIC, SA and QLD.
View the informative speaker presentations from the 2015 Sydney Awareness Day Seminar.
As a financial CMTAA member, you can now view the informative presentations from our 2017 National Awareness Day Seminar.
View the informative speaker presentations from the 2014 Sydney Awareness Day Seminar.
The CMT specific survey titled "A SURVEY OF COST-UTILITY, WELLBEING AND MANAGEMENT" has now been completed. A BIG THANK YOU to all who gave of their time and CMT experience to contribute to the survey.
Share the fun at our 2014 CMT Aussie Kids weekend August 2014.
The CMTAA congratulates Emeritus Professor Robert Ouvrier on being acknowledged by The Royal Australasian College of Physicians (RACP).
A significant benefit for children participating in this trial is that they will be at the forefront of clinical research. They will be involved in a unique experimental treatment that will provide solid training in self-discipline preparing them for future adult life as a person with CMT. This trial is now being extended to include regional NSW areas.
Inspired by the fact that his son has CMT, Kevin has now successfully completed his trek to Mt. Everest base camp.
The good news - Kev's book "Walk With Me" will be launched on Saturday November 22.
Melbourne and Sydney research studies. An excellent opportunity to assist our researchers to assist us through participating in research studies for children in both Melbourne and Sydney and a research study for adults in Sydney.
Exciting developments in CMT1A research.
See our range of CMT DVD's available for sale here!
An excellent overview of Genetic testing that assists us in understanding more of the "pros and cons" involved.
Sydney Morning Herald article about CMT: Charcot-Marie-Tooth disorder, the most common inherited neurological condition, is poorly understood.
Latest research from the INMR about Charcot-Marie-Tooth disease and other peripheral neuropathies. Exciting research details regarding 7 abstracts covering treatment criteria.
We studied the timing and progression of foot and ankle changes in 81 children with genetically confirmed Charcot-Marie-Tooth disease type 1A (CMT1A) and determined their impact on motor function and walking ability.
Latest research from the INMR about Charcot-Marie-Tooth disease and other peripheral neuropathies. Exciting research details regarding 9 abstracts covering assessment criteria.
An opportunity to assist our researchers by participating in a new research initiative involving CMT families and family members.
View the informative speaker presentations from the 2012 Sydney Awareness Day Seminar.